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Caregivers of Children with APDS Balance Complex Medical Care, Family, and Work Responsibilities
Article
Article
Kristie Cline et al · Rockefeller University Press · 2026 · ISSN 3065-8993
RationaleActivated PI3K delta syndrome (APDS) is a rare primary immunodeficiency disease (PID) characterized in 2013. Caregivers of children with APDS juggle management of complex medical needs with family and work respo...
LCC LCC:Immunologic diseases. AllergyIdioma English
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Open Access
A mobile app (mWITH ME) for family caregivers of persons living with Alzheimer’s disease: development and initial evaluation
Article
Article
Anni Yang et al · BMC · 2026 · ISSN 1472-6947
Abstract Background The rising global aging population has increased the prevalence of Alzheimer’s disease (AD), a condition with limited treatment options, making non-pharmacological interventions essential. While mob...
LCC TENDOkNvbXB1dGVyIGFwcGxpY2F0aW9ucyB0byBtZWRpY2luZS4gTWVkaWNhbCBpbmZvcm1hdGljcw~~Idioma English
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Open Access
Adaptation of the Five-Facet Mindfulness Questionnaire-Short Form (FFMQ-SF) to Spanish Family Caregivers of People with Intellectual and Developmental Disabilities
Article
Article
Lucía Oñate et al · Servicio de Publicaciones de la Universidad de Murcia · 2018 · ISSN 0212-9728
Abstract In recent years, mindfulness-focused interventions have garnered attention in the area of family members of people with an intellectual and developmental disability (IDD). The mindfulness trait has been related ...
LCC TENDOlBzeWNob2xvZ3k~Idioma English
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Open Access
Cerebral Palsy: Parental Stress of Caregivers
Article
Article
Mayara Barbosa Sindeaux Lima et al · Universidade de São Francisco, Programa de Pós-Graduação Stricto Sensu em Psicologia · 2021 · ISSN 2175-3563
Abstract The aim of this research was to investigate indicators of parental stress among caregivers of children with Cerebral Palsy. The study covered a total of 132 participants who responded to the following instrument...
LCC TENDOlBzeWNob2xvZ3k~Idioma English
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Material complementario
Coping strategies among caregivers of people with Alzheimer disease: a systematic review
Article
Article
Alexandre Magno Frota Monteiro et al · Associação de Psiquiatria do Rio Grande do Sul · ISSN 2238-0019
Abstract Introduction Caregivers of people with Alzheimer disease (PwAD) report significant stress, burden and depression compared to caregivers of people with other dementias, especially when neuropsychiatric symptoms...
LCC TENDOlBzeWNoaWF0cnk~Idioma English
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Open Access
Meaning-Centered Psychotherapy for Cancer Caregivers: Study protocol of a randomized controlled trial
Article
Article
Allison J. Applebaum et al · BMC · 2026 · ISSN 1745-6215
Abstract Background Caregivers of patients with advanced cancer shoulder immense responsibilities as they care for patients, including symptom and medication management, providing emotional support, and navigating health...
LCC TENDOk1lZGljaW5lIChHZW5lcmFsKQ~~Idioma English
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Open Access
Predictors of intent to use digital memory books among informal dementia caregivers
Article
Article
Yura Lee et al · International Society for Gerontechnology · 2026 · ISSN 1569-1101
Background: A memory book is a popular reminiscence approach for people with dementia (PwD) and caregivers. Recently, it has evolved into a digital format by incorporating music, videos, and other multimedia, referred to...
LCC TENDOlRlY2hub2xvZ3k~; TENDOlRoZSBmYW1pbHkuIE1hcnJpYWdlLiBXb21hbg~~Idioma English
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Open Access
Stress Levels and Coping Strategies Among Caregivers of Breast Cancer Patients: A Cross-Sectional Study in Central Kerala
Article
Article
Shaji E. J. et al · Social Medicine Publication Group · 2026 · ISSN 1557-7112
Background. Cancer profoundly affects both patients and their caregivers, making it a devastating illness. This study aimed to assess stress levels and their correlation with coping strategies among primary caregivers of...
LCC LCC:Public aspects of medicine; TENDOlNvY2lvbG9neSAoR2VuZXJhbCk~Idioma English
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Material complementario
The Feasibility and Preliminary Effects of a Stress Process Model-Based Program in Dementia Caregiving (DeCare-SPM) for Family Caregivers: A Mixed-Methods Pilot Study
Article
Article
Wu J et al · Dove Medical Press · 2026 · ISSN 1178-2390
Jie Wu,1,* Xuelian Li,1,* Weichu Liu,2 Yingzhuo Ma,1 Qinghua Zhao,1 Mingzhao Xiao,1 Jun Wang1 1Department of Nursing, The First Affiliated Hospital of Chongqing Medical University, Chongqing, People’s R...
LCC TENDOk1lZGljaW5lIChHZW5lcmFsKQ~~Idioma English
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Material complementario
The impact of decreased environmental reward in predicting depression severity in caregivers
Article
Article
Fernando L Vázquez et al · Servicio de Publicaciones de la Universidad de Murcia · ISSN 0212-9728
Abstract: Reward has not been examined as a predictor of depression in the caregiver population despite the high prevalence of depression. The aim of this study was to analyze reward as a predictor of the level of depres...
LCC TENDOlBzeWNob2xvZ3k~Idioma English
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Material complementario
The impact of sleep disorders of children with severe medical complexity on their caregivers’ sleep: a perspective from two pediatric palliative care centers
Article
Article
Filippo Pigani et al · BMC · 2026 · ISSN 1824-7288
Abstract Purpose This study aimed to investigate sleep patterns in children with severe medical complexity (CMC) eligible for pediatric palliative care (PPC) and to evaluate the specific impact of these patterns on their...
LCC TENDOlBlZGlhdHJpY3M~Idioma English
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Open Access
A Rasch Analysis of the Zarit Burden Interview (ZBI) Scale Among Tsunami Survivors’ Caregivers
Article
Article
Novita Sari et al · Universitas Gadjah Mada · 2026 · ISSN 0215-8884
This study aimed to validate the Zarit Burden Interview (ZBI) among caregivers of elderly tsunami survivors in Aceh,Indonesia. In contexts characterized by disasters or significant social disruption, such as the aftermat...
LCC TENDOlBzeWNob2xvZ3k~Idioma ind
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Open Access
Burden of care in caregivers of patients with alcohol use disorder and schizophrenia and its association with anxiety, depression and quality of life
Article
Article
Rishi Desai et al · Wiley · 2020 · ISSN 2517-729X
Background Caregivers play a pivotal role in providing care for mentally ill patients. Increase in caregiver burden can make them vulnerable to mental illness themselves.Aims We assessed the severity of burden of care an...
LCC TENDOlBzeWNoaWF0cnk~Idioma English
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Material complementario
Caregiver Burden among Primary Caregivers of Community-Dwelling Older Adults: A Systematic Review
Article
Article
Kiana Ramezani et al · Shiraz University of Medical Sciences · 2025 · ISSN 2345-6167
Background: Caregivers are individuals responsible for assisting older, sick, or disabled persons. The majority of care services are provided by family members acting as primary caregivers. Providing care for older peopl...
LCC LCC:Therapeutics. PharmacologyIdioma English
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Open Access
Cultural aspects in dementia: differences in the awareness of Brazilian caregivers
Article
Article
Raquel L. Santos et al · Associação de Psiquiatria do Rio Grande do Sul · 2013 · ISSN 2238-0019
Objective: To explore differences in disease awareness in participants of a psychoeducational group designed for Latin American caregivers of people with dementia. Method: We assessed participants of a group developed at...
LCC TENDOlBzeWNoaWF0cnk~Idioma English
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Open Access
Diagnosis of mental disorders in caregivers of patients with bipolar disorder: a gap in the scientific literature
Article
Article
Sarah Prates et al · Associação de Psiquiatria do Rio Grande do Sul · 2026 · ISSN 2238-0019
Abstract Objective: Caregivers appear to experience mental health implications related to their role in supporting patients with bipolar disorder (BD). This study aimed to review the literature assessing the presence of...
LCC TENDOlBzeWNoaWF0cnk~Idioma English
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Open Access
Discrepancies in symptom concerns and burden from the perspectives of parkinson's disease patients, caregivers, and physicians
Article
Article
Shohei Okusa et al · Frontiers Media S.A · 2026 · ISSN 1664-2295
BackgroundDiscrepancies in symptom concerns and the perceived burden among individuals with Parkinson's disease (PD), their caregivers, and their physicians can hinder effective care.ObjectivesWe investigated differences...
LCC LCC:Neurology. Diseases of the nervous systemIdioma English
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Open Access
Effects of an instruction manual on behavioral repertoires of caregivers of children with cancer
Article
Article
Izabel Cristina da Silva Brasiliense et al · Universidade Federal do Paraná · 2016 · ISSN 1981-8076
The aim of this study was to assess the short and mid-term effects of an instruction manual on the observable behaviors of caregivers of children with cancer during venipuncture in an outpatient setting. Twelve caregiver...
LCC TENDOlBzeWNob2xvZ3k~Idioma English
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Open Access
Effects of the frequency and satisfaction with leisure profile on dementia caregivers distress
Article
Article
Rosa Romero-Moreno et al · Servicio de Publicaciones de la Universidad de Murcia · 2014 · ISSN 0212-9728
Objectives: The PEAR (pleasant events-activity restriction) model has been proposed as a way of understanding leisure effects on dementia caregivers' distress. Considering both the PEAR model and the stress and coping mo...
LCC TENDOlBzeWNob2xvZ3k~Idioma English
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Institucional
Elderly caregivers profile and oral health perception
Article
Article
Nemre Adas Saliba et al · Universidade Estadual Paulista Júlio de Mesquita Filho (UNESP) · 2007 · ISSN 1414-3283
The aim of this study was to evaluate the profile and the oral health perception of elderly caregivers who in charge of giving assistance to three benefiting institutions in the city of Araçatuba, Brazil. A form was fil...
LCC LCC:Public aspects of medicineIdioma English
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Open Access
Exploring the Cultural Adaptation of an Ongoing Evidence-Based Intervention for Chinese and Korean American Dementia Caregivers: Descriptive Study
Article
Article
Eunjung Ko et al · JMIR Publications · 2026 · ISSN 2561-326X
Abstract BackgroundThe aging and caregiving population is becoming increasingly diverse in the United States, leading to a growing need for culturally adapted interventions to address the unique needs of unde...
LCC LCC:MedicineIdioma English
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Open Access
Exploring the perceptions and experience with costs associated with cancer care among Chinese and Asian Indian patients and caregivers: a qualitative study
Article
Article
Nisha A. Mohindra et al · BMC · 2026 · ISSN 1471-2318
Abstract Background As the cost of cancer care continues to rise, financial concerns of patients and families are increasingly common. There is a paucity of data about the financial burden that Asian patients face when d...
LCC TENDOkdlcmlhdHJpY3M~Idioma English
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Open Access
High burden and frailty: association with poor cognitive performance in older caregivers living in rural areas
Article
Article
Allan Gustavo Brigola et al · Associação de Psiquiatria do Rio Grande do Sul · 2017 · ISSN 2238-0019
Abstract Introduction: Older caregivers living in rural areas may be exposed to three vulnerable conditions, i.e., those related to care, their own aging, and their residence context. Objective: To analyze the associat...
LCC TENDOlBzeWNoaWF0cnk~Idioma English
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Open Access
Leveraging MedlinePlus to Improve Health Information Access Among Patients and Caregivers: Systematic Literature Review
Article
Article
Fei Yu et al · JMIR Publications · 2026 · ISSN 2291-9694
Abstract BackgroundMedlinePlus, developed by the National Library of Medicine (NLM) in the United States, is one of the most widely used, authoritative, consumer-grade health information resources on the web....
LCC TENDOkNvbXB1dGVyIGFwcGxpY2F0aW9ucyB0byBtZWRpY2luZS4gTWVkaWNhbCBpbmZvcm1hdGljcw~~Idioma English
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Open Access
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